Spinal Muscular Atrophy (SMA) is a very disabling and rare neurodegenerative disease affecting daily basic activities such as the ability to move, eat or get dressed.
It affects about 1,500 people in Spain, making this disease essentially invisible to society. But beyond those diagnosed with it, there are many other people hidden behind someone with SMA – their caregivers. They suffer from SMA as well, but from a very different perspective. Not only are the patients are invisible to society, but caregivers are too.